Long Covid Land Toolbox
Key Missions
Legislate – Investigate – Ventilate – Educate
We advocate for 4 key areas: Legislation is vital to create the infrastructure for equality & safety for all those with Long Covid: Investigation into the biomedical roots to find an effective treatment: Ventilation to ensure prevention & an accessible society & Education for medical professionals & the public to challenge the stigma & misconception of Long Covid & ME/CFS.
Welcome to the Long COVID Resource
The COVID-19 pandemic has led to a widespread occurrence of Long COVID, a condition that significantly impacts health, daily life, and overall well-being. Long COVID, also referred to as post-acute sequelae of SARS-CoV-2 infection (PASC), affects a broad spectrum of people, irrespective of the initial severity of their COVID-19 infection.
The Long COVID Resource is dedicated to providing information and resources on Long COVID. We are committed to ensuring that individuals who are experiencing prolonged symptoms following a COVID-19 infection have access to the information and support they need. We recognize the profound challenges faced by individuals living with ongoing symptoms after recovering from the initial infection.
Beyond a simple list of facts, we strive to empower you with knowledge and tools to navigate this complex condition. Whether you’re recently diagnosed, struggling with persistent symptoms, or seeking support for a loved one, our website offers a safe harbor and a wealth of resources.
Autoimmune/Inflammatory Tissue Disorders Associated With COVID-19 Infection
Key Takeaways
- COVID-19 infection is associated with increased risk of various autoimmune and autoinflammatory disorders, including alopecia areata and Crohn disease.
- Severe COVID-19, Delta variant, and unvaccinated status are linked to higher autoimmune risk.
- Despite increased risk, autoimmune disease incidence post-COVID remains rare, cautioning against unnecessary testing without symptoms.
- Further research is needed to assess risk for individuals with preexisting autoimmune conditions post-COVID-19 infection.
NETosis induction reflects COVID-19 severity and long COVID: insights from a 2-center patient cohort study in Israel
“Increased NETosis induction can be detected in patients with long COVID. NETosis induction appears to be a more sensitive NET measurement than MPO-DNA levels in COVID-19, differentiating between disease severity and patients with long COVID.” Ongoing NETosis induction capability in long COVID may provide insights into pathogenesis and serve as a surrogate marker for persistent pathology. This study emphasizes the need to explore neutrophil-targeted therapies in acute and chronic COVID-19.
THE UNRAVELLING - A SCIENTIST . AN ARTIST . A FATHER
Self-funded short documentary about the true nature of Covid / Sars-CoV-2, and the impact that Long Covid has had on one family.
Derived from material photographed in Sept. 2024 for the feature length documentary project THE UNRAVELLING, currently in pre-production / development.
Presented as a public service and copyright free. Please download / copy / share / post as you see fit.
Featuring interviews with:
Dr. Ziyad Al-Aly – Dir. Clinical Epidemiology, University of Washington, St. Louis, USA
Rosie Pidgeon – Student / Artist – Belfast, N. Ireland, UK
Colin Pidgeon – Father – Belfast, N. Ireland, UK
Original Music
ANDREW HEATH
www.andrewheath.co.uk
www.andrewheath.bandcamp.com
Director / Camera / Editor
GRANT WAKEFIELD
www.grantwakefield.com
Advocacy & Resources available from:
www.longcovidkids.org
Interview with Dr. Amy Proal
@D_Bone hosted this space with Dr. Amy Proal, a microbiologist at PolyBio Research Foundation. She serves as PolyBio’s President, Research Director and on the Board of Directors.
Let’s welcome @microbeminded2 and @polybioRF to a Q&A session to discuss the current landscape of #LongCovid research.
Recorded Nov. 10, 2023
Educational and awareness-based resources to support long COVID care and rehabilitation across the continuum of care.
The St. John’s Rehab research program conducts collaborative, person-centered research that focuses on optimizing long-term outcomes and incorporating real world, lived experiences across the continuum of care.
Our Long COVID research team strives to explore the psychosocial impact that long-lasting COVID symptoms have on individuals and their families. With this Hub, we aim to create patient-focused educational resources and raise awareness on the realities of living with long COVID.
Introduction
In early 2023, the Office of the Chief Science Advisor published a report titled “Post-COVID-19 Condition in
Canada: What we know, what we don’t know, and a framework for action”.
The PCC Report took into account the existing scientific literature and published evidence through to October 2022, as well as the perspectives
of people with lived experience and input from several expert roundtables held in 2022. During the following months, research into the frequency, manifestations, causes, and treatment of PCC intensified.
On February 27, 2024, a meeting of the Chief Science Advisor’s Task Force on Post-COVID-19 Condition2 was convened to take stock of the latest science and policy actions related to PCC and formulate priority recommendations based on the current state of science. The scientific updates and deliberations from this meeting, as well as recent literature up to June 2024, inform this report “Dealing with the Fallout: Post-COVID-19 Condition and Its Continued Impact on Individuals and Society”. In addition to providing recommendations, this report sets important goals to continue to raise awareness of PCC, to help prevent its development and to minimize its health and societal impact.